22 March 2018
MJD celebration marks 10 years of ALC support

THE MJD Foundation has plans for more festivities on Groote later in the year following its 10th anniversary celebration in Darwin this month.

The Foundation started 10 years ago with only $100,000 from the Federal Government and $100,000 from the ALC.

In his speech at the celebration, ALC chair Tony Wurramarrba said he was proud to see the MJD Foundation grow into a strong organisation supporting Aboriginal people in the NT and Queensland.

“I am especially proud that the traditional owners of Groote Eylandt have provided leadership in supporting families living with MJD,” Tony said.

“The ALC took the brave step of supporting MJD (Machado Joseph Disease) research with two donations of $1million over the last 10 years, and we are very hopeful of the good progress that is happening in the research area. This continues to provide hope for people living with MJD for themselves and for their families in the future.”

He paid his respects to the people with MJD that had passed away. 

Foundation deputy chair Gayangwa Lalara said she was proud to have been a part of the Foundation since it began.

“We know that two-way working with Aboriginal and non-Aboriginal staff is the only way,” Gayangwa said.

“We are strong, and we act from the heart with trust and love and care. We want to get the very best for people with MJD and their families. Family is important in everything we do.”

She said she looked forward to the next 10 years, and hoped to have a future free from MJD. 

The main activities of the MJD Foundation are providing education, equipment and community services, primary health, and mainstream supports, research, and advocacy at a government policy level.